“For the 300 million people living with a rare disease, this is an age of innovation. Early detection and treatment has yielded astonishing advancements, signaling the possibility of broader impact through revolutionary testing methods and customized therapies.

“To help international journalists tell stories of these possibilities and the challenges that remain, the National Press Foundation is providing a week of free online training [Nov. 17-21, 2025] for professional journalists in any medium. This fourth in a series of journalism fellowships, made possible with support by Fondation Ipsen, will consist of on-the-record briefings and question-and-answer sessions with top experts, including topics such as childhood disease therapies, AI-driven drug development and venture capital for rare disease research. Journalists will also hear from leaders of global patient advocacy groups and veteran journalists in the field.

“All accepted fellows will receive the training. In addition, NPF will offer up to $2,000 in reporting grants to 20 journalists to cover travel expenses and time in executing a rare diseases project of their choosing.”